Page updated 9 October 2007
14.0. Further Information and References
Advice may also be obtained from, and referrals for all suspect prion disease cases should go to:
The National Prion Clinic at NHNN
Phone: 020 7692 2397
Fax: 020 7692 2406
E-mail: help.prion@uclh.nhs.uk
Research Units
The UK CJD Surveillance Unit (Edinburgh)
Patient support groups
The Human BSE Foundation (vCJD)
The CJD Support Network (other forms of prion disease)
Advice on the care of patients with prion disease or vCJD is available at:
TSE Agents - Safe Working and the Prevention of Infection
Crutzfeldt-Jakob disease guidance for health workers
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